Caregiver Well-Being at the Holidays: The Power of Gratitude

Thanksgiving is a time of gathering, family, food, and reflection, but can also be very stressful for caregivers. There’s a lot to do, from preparing food to managing more people than normal. It’s easy to get lost in all the chaos but taking a moment to remember what the holiday is all about can help calm things down. Practicing gratitude is an easy way to both relax and reflect on yourself and include your loved ones. Gratitude has many benefits for both caregivers and older adults, and can foster a sense of togetherness, much like the goal of the holiday itself. 

 

Benefits of Gratitude: 

  • Builds resilience 
  • Fosters a sense of community between generations 
  • Improved sleep 
  • Imcreased self-esteem 
  • Encourages a more positive outlook
  • Makes positive time for yourself 

 

Simple Gratitude Practices: 

  • Write down things you’re grateful for, such as friends, family, or positive memories in a gratitude journal. Alternatively, you could record audio messages if writing is difficult. 
  • Send thank-you cards to friends and family to show you appreciate all they do for you, or even just that they’re there for you. 
  • Talk with others about what you’re thankful for, a good activity to do with your loved one. Sitting down and having a positive conversation can be a good relationship booster with  
  • Practice gratitude while doing another enjoyable activity, such as having tea or talking with your loved one 
  • Make a pet rock and tell your new pet three things you’re grateful for. A gratitude buddy you can talk to at any time! 

 

More Resources: 

 

-Kayla Regli

Inclusive Halloween Activities for Older Adults and Families

Fall is rapidly falling upon us, and that means that Halloween is closer than you may think. While usually seen as a fun day for children, people of all ages can get in on the Halloween fun, with skill-level appropriate activities. Not everyone may be able to partake in something the “traditional” way, but don’t be afraid to make adaptations so that whoever you care for can have a fun time. There are a lot of fun things you can do with supplies you already have, and you don’t have to put on the perfect party for people of all ages to have a good time. Here are some ideas for activities everyone can enjoy, along with tips to make everything run smoothly. 

Fun, inclusive Halloween ideas: 

  • Arts and Crafts: Find simple crafts that are both engaging to any children at the party but also accessible to the older adults in your life. You could also break up a craft into smaller parts and have people be a part of an assembly line. Great examples of this are paper lanyards, no-carve pumpkins (decorated with paint or paper), goodie bags, and even just coloring pages. These can then be put up as decorations that everyone had a hand in making!  
  • Festive Baking: Cookies and cupcakes are easy to make and even easier to decorate! Make the goodies ahead of time, or get them from the store, and lay out frosting, sprinkles, and other candy for participants to put on their treat. A simple activity suitable for all ages! 
  • Games: There are a lot of classic games that can be spun into a fun Halloween, or even just Fall variety! Bingo but in fall colors and with fun shaped stamps, Halloween trivia (What was originally carved instead of pumpkins? Turnips!), or a scavenger hunt, either outside with Fall foliage or inside with candy, toys, or decorations. 
  • Costumes: A staple of Halloween, but not every older adult is interested or able to put a lot of effort into something, and some costumes may simply be too scary for some people. But anyone can still dress festively by making an outfit in fall colors or adding smaller accessories to convey a costume. You could even have a little costume parade through the house so everyone can show off what they came up with! 

Some Things to Keep in Mind: 

  • Informing about the upcoming holiday: Fall can be a busy time, and dates like holidays can easily slip by someone’s mind. Give gentle reminders to your loved one about when Halloween is and what you will be doing for it, so it isn’t a surprise when routine gets broken to make way for the festivities. 
  • Motor skill differences: Does your loved one have the control it takes to do the activity? If you’re doing crafts, will cutting things out or gluing them down be a challenge to them? Make sure to select activities or make modifications that make it safe and accessible to those both young and old participating, like having shapes already cut out or using washable paint. 
  • Time of Day: Halloween festivities usually take place late at night after it’s dark, but this is also a time when some older adults get more agitated and tired. Try having activities earlier in the day, when it’s lighter outside and everyone has more energy. 
  • Trick-or-Treaters: While hearing the doorbell ring and answering to find kids in costumes is usually considered part of the fun, some people may find these disruptions irritating, or the costumes scary. One solution is to have the party or activities in a room away from the front door and have someone assigned to door duty to keep disruptions to a minimum. Alternatively, you could turn off the porch lights, put a sign saying no trick-or-treaters up, and/or leave out a bowl of candy for free taking to just avoid visitors altogether. 

More Resources: 

 

-Kayla Regli

Staying Safe in the Summer Heat

Things are heating up across the country as we dive deeper into the summer months. Now is as important as ever to stay safe in the summer heat and protect yourself and loved ones from heat illnesses. Stay cool, and well hydrated with these tips below:

  • Wear appropriate clothing: light weight, light colored, and loosely fit
  • Apply sunscreen: SPF30 or higher, about 30 minutes before going out into the sun
  • Limit outdoor activity to mornings and evenings while avoiding middle of the day heat and sun exposure
  • Seek out shade when outdoors
  • Drink plenty of water, and carry a bottle with you for convenience and to refill as needed

Preventing heat injuries is only part of the safety. Know the signs of heat illnesses, and what to do if you suspect heat illnesses, such as stopping activities and seeking medical help. Learn more about how to prepare and what to do with this short guide from Brown Health University. Staying safe in the heat of summer is a combination of preventative actions and appropriate decision making.

https://www.brownhealth.org/be-well/how-seniors-can-stay-safe-summer 

Stay safe and have fun this summer!

The Caregiver’s Spring-Cleaning List

Dust off the cobwebs, clean out the drawers, and sweep up the dust bunnies.

As the days get longer and warm up, what better time than to clean and get ready for summer? Some small tasks you can do now will help to make a difference in your and your loved one’s lives down the road. You can update your records and medication lists, prepare supplies for the hotter months and bring in a fresh start this spring. When you need something to do or want to stay indoors, cleaning up the clutter is a great way to bring a renewed spirit to your space. Whether you choose to keep, donate, or trash the clutter, you can free up space and decrease stress. Plus there is less to dust again down the road!

Take a look at this to-do list from Liberty Homecare and Hospice that can help you to prioritize your home and make things a bit easier as the days heat up.  https://libertyhomecareandhospice.com/spring-cleaning-tips-for-seniors-and-their-caregivers/

 

Celebrate Older Americans Month this May!

Did you know that May is recognized as Older Americans Month? Established in 1963, the goal of Older Americans Month is recognizing and celebrating the contributions of older adults in our communities. May means recognizing and honoring older adults from all walks of life including veterans, volunteers, grandparents, and in many cases, caregivers. 

Caregivers and the people they care for can be all sorts of ages—there’s no one-size-fits-all when it comes to age in caregiving relationships. If you and/or the person you are caring for is being celebrated in the month of May, make time to celebrate. This could mean sharing a special meal together, taking time to have a meaningful conversation about your life experiences and contributions, or partaking in a celebratory activity. 

In terms of celebratory activities to honor older adults in the month of May, the City of Reno does not disappoint. From ice cream socials to senior discounts to art exhibitions, May is chock full of engaging and affordable events for all ages to honor older adults in our community. Carson City also hosts a Senior Celebration in honor of Older Americans Month. The lengthy list of Older Americans Month activities and resources is attached below, so feel free to look through and find the events that are right for you and your care partner!

https://www.washoecounty.gov/seniorsrv/older_americans_month/files/OAM-Brochure-2025-Final.pdf

-Isabella Durda

Managing Stress with Meditation

Caregiving can be incredibly rewarding, but it can also be challenging at times. When challenging situations arise, it is important to be able to navigate them in a way that is positive and beneficial for the person you are providing care for as well as yourself. There are many forms of self-care, but meditation is a method that can make a large difference in a small amount of time.

Meditation has been used for thousands of years, and it involves training the mind to reach a higher level of focus and a state of calm. Studies show that meditation improves attention, memory, and overall cognition. Over time, consistent meditation can even decrease anxiety and improve emotional regulation!

A common misinterpretation concerning meditation is that it needs to be elaborate or time intensive. The reality is that meditating for even one minute can make a difference! In this case, consistency is key. For people with busy schedules, such as caregivers, it may be beneficial to meditate for just a couple minutes here and there.

When you are just starting to meditate, it can be intimidating. Here are a couple beginner-friendly methods to get you started:

  • Breath Awareness Meditation: Sitting in a comfortable position, close your eyes and focus solely on your breath. When your mind begins to wander, direct your thoughts back to your breathing. Continue this process until your decided amount of time has passed. The focus in this situation is simply noting the natural rhythm of your breath.
  • Body Scan Meditation: Sitting in a comfortable position, close your eyes and begin to mentally scan your body. Notice where you are making contact with surfaces around you. Notice if any areas feel hot or cold. Notice where in your body you are experiencing aches and pains. Continue with this process until your decided amount of time has passed. The focus of this meditation is to become more aware of your body and to move outside of your mind by focusing on the physical.

 

Helpful Tips for Meditation:

*Tip #1: If you are setting a timer for your meditation, try to choose a relaxing ringtone to maximize the effects of meditation

*Tip #2: If you decide to try meditation and become comfortable with it, feel free to try it out with the person you are caring for!

-Isabella Durda

 

Sources

https://pmc.ncbi.nlm.nih.gov/articles/PMC4024457/#:~:text=On%20the%20basis%20of%20a,cognitive%20function%20in%20older%20adults 

https://www.hunimed.eu/news/12-science-based-benefits-of-meditation/

The “Sanford Assessment” from the Sanford Center for Aging

As the new year unfolds and we navigate the last month(s) of winter, caregivers may find themselves in need of a little self-care.  As caregivers, we often put our care-recipient’s needs ahead of our own. Sometimes we also may need care and aren’t sure what exactly we need. Further, social isolation can contribute to the everyday challenges of caregiving making even the most common tasks more difficult.

The Sanford Assessment, is a community-based health and wellness assessment that provides a comprehensive review for people 60 and older. This assessment also provides recommendations and possible resources for participants. Information especially helpful for self-care, such as, being aware of your risk of falling or a comprehensive review of any medications (both under and over the counter) may be especially helpful for your selfcare. You may want to also sign up your care-recipient for this assessment as well.

Best of all, this new assessment is offered free of charge! Components of this assessment include:

  • Comprehensive medication review.
  • Screening for risk of falls.
  • Cognition screening.
  • Support for depression, anxiety, isolation and other social risk factors.
  • Personalized supportive services plan (shared with your primary care provider, if appropriate).
  • Referrals to appropriate community resources.

In addition to the assessment, Sanford Center for Aging offers other free services to older adults, including evidence-based health and wellness programs, transportation, the Senior Outreach Services companionship program, medication review and education for healthcare providers and caregivers.

Those interested in an appointment can call (775) 784-4774 option 4 or visit the Sanford Center for Aging website for more information or go directly to the Sanford Assessment page https://med.unr.edu/sanford-center/outreach/geriatric-specialty-care.

 

-Sue Harris, PhD

Dementia Self-Management Program

The Dementia Engagement, Education and Research (DEER) Program is excited to offer a free, 6-week Dementia Self-Management Program. This innovative program is designed to help develop personal strategies to support living well with dementia! This program will be held online and is based on the science of chronic disease self-management. It is designed for individuals who have been recently diagnosed with a dementia-related condition, or who are experiencing cognitive changes.

This program is designed for people living with mild to moderate cognitive changes. Participants must be able to engage in the program independently.

Topics covered include:

  • Introduction to brain health
  • Types of dementia and dementia misconceptions
  • Planning your healthcare
  • Planning your lifestyle
  • Making sense of dementia
  • Connecting and communicating with others
  • Focusing on possibilities

Hear from others experiencing similar situations and learn from one another in a supportive environment. You can click here to learn more about Dementia Self-Management and the guidebook.

Program dates:
Thursdays, May 16 – June 20, 2024
9:30 – 11:00 AM Pacific time
Location: 100% online and open to anyone in the United States

To join the program:
Email DEERprogram@unr.edu
or call (775) 682-9444

Upcoming Programs and Resources for Caregivers

Spring is almost here, and this is a great time to get involved with community programs and events! Below are just a few of the events coming up this spring. 

Kids and horses logo

Kids & Horses partners with Connected Horse® to offer powerful workshops to individuals with memory loss and their care partners. These workshops provide the opportunity for people living with memory loss and their care partners to be together as they experience non riding activities with horses. Based on research conducted at UC Davis and Stanford Universities, these workshops resulted in significant improvement in mood, increased positive perception of social support, and greater awareness and appreciation of the relationship between the person with memory loss and their care partner.

Workshops are 2.5 hours, once a week for three consecutive weeks. It is requested that you attend all three sessions. Prior experience with horses is not necessary. Participants engage with horses from the ground, there is no riding. Participants must be ambulatory and willing to participate as a pair in the workshop.

When: 

Session 1 is May 4, 11 and 18 (9:00-11:30 a.m.)

Session 2 is June 1, 8 and 15 (9:00-11:30 a.m.)

Where: Kids & Horses, 2869 Esaw St., Minden, NV

Cost: Free, but donations are gratefully accepted

To sign up or learn more: Call (775) 267-1775

 

DEER logo

You can live well with dementia! This is a free, six-week program offered by the Dementia Engagement, Education and Research (DEER) Program at UNR. It is based on the science of chronic disease self-management and developed for individuals who have been diagnosed with a dementia-related condition, or who think they might be. This program is designed for people living with mild to moderate cognitive changes. Participants must be able to engage in the program independently.

When: Thursdays, May 16 – June 20, 9:30 – 11:00 a.m.

Location: Zoom- join from anywhere!

To sign up: Email DEERprogram@unr.edu or call (775) 682-9444

Managing Daylight Savings Time

Daylight Savings Time is on Sunday, March 10, 2024. Having one less hour in the day can add an extra layer of stress for caregivers as it can disrupt their already demanding routines and affect the well-being of those they care for. It is important to be proactive and implement strategies to mitigate the effects.

Here are some tips to help manage sleep and stress during this transition into Daylight Savings Time:

  1. Plan ahead and gradually adjust your sleep schedule a few days before the time change. Start by going to bed and waking up 10-15 minutes earlier a few days prior.
  2. Create a relaxing bedtime routine by establishing a calming environment. This could include activities like reading, taking a warm bath, or practicing relaxation techniques such as deep breathing or meditation.
  3. Practice self-care and manage your stress level by taking care of your own well-being. Engaging in stress-reducing activities such as exercise, yoga, mindfulness meditation, or spending time in nature can help reduce your stress. Managing stress can help improve sleep quality and overall well-being.
  4. If you continue to struggle with sleep or stress, consider seeking professional help if needed.

By being proactive and implementing these strategies, caregivers can navigate the challenges of Daylight Savings Time more effectively, ensuring the well-being of both themselves and those they care for.

Kaitlyn Cummings, BSN, RN

Dementia Friendly Washoe County: Pioneer Center Performances

Dementia Friendly Washoe County partners with Pioneer Center Golden Encore to bring high-quality performances of art, music, and theater to elders in Washoe County, with an emphasis on ensuring a dementia-friendly and inclusive environment. Open Door Café featuring Pioneer Center Golden Encore events, which are co-sponsored by the City of Reno, will be held at the McKinley Arts and Culture Center in Reno, from

11:00 AM – 1:00 PM on the following dates:

  • February 14, 2024
  • March 12, 2024
  • April 9, 2024
  • May 14, 2024
  • June 11, 2024

 

Located at: McKinley Arts and Culture Center, 925 Riverside Dr, Reno NV

These are FREE and OPEN to all of the public! RSVP Here if you plan on attending

Details of performances: DFWC Golden Encore Flyer ADA

To learn more about Dementia Friendly Washoe County, please visit: dfnv.org/washoe

Importance of Self Care During the Holidays

              Caregiving during the holidays can be particularly challenging as this often adds more stress and strong emotions can emerge. There are common challenges that caregivers can face during the holiday season and we would like to offer you some tips on how to find more joy and understanding during this busy time. During the holiday season there are many time constraints, energy demands, emotional events, and financial strains that add increased stress. Feelings of isolation may occur, as navigating and balancing family traditions can be more challenging, and you may neglect your own self-care. To help with the increasing stress during the holidays, it is important to seek support, be flexible, express gratitude, and to have self-compassion.

              Caregivers already have demanding schedules and the holidays add more time and energy constraints with the added extra tasks and responsibilities. Caregivers can also have increased emotional toll during this time as the holidays can bring up feelings of sadness or nostalgia. The financial strain during this time can be difficult to cope with as holiday expenses can increase financial stress in caregivers. In order to manage stress during the holidays, try to:

  • Prioritize self-care.
  • Set realistic expectations.
  • Delegate other tasks to your support network to help lighten the load.
  • Acknowledge your emotions: taking time for to feel and process your emotions is particularly important during the holidays.
  • Create a budget for holiday spending and consider reaching out to local organizations for assistance.

              With increasing responsibilities, isolation is a common feeling during this time and so it is important to stay connected with loved ones. Video calls can be a great way to stay in touch and celebrate virtually. You can also arrange respite care to give yourself a break.

              Balancing family traditions can be challenging especially if they conflict with caregiving. Some tips on balancing family traditions are to communicate with your family about the responsibilities that you have and to find alternative ways to celebrate traditions. Disregarding your own self-care is a challenge during this time and so it is important to take breaks, engage in relaxation techniques and maintain a healthy routine.

              Further, to find more joy and understanding during the holidays it is important to focus on positive aspects of caregiving and the holiday season. Express gratitude for the moments you can share with your loved one. Be open to adjusting your expectations and embrace the imperfections and moments that can bring you joy. Remember to alwaysreach out and ask for help from your support people around you and connect with other caregivers who can relate to your experiences. Be specific about what you need. Most importantly, be kind to yourself and recognize that it is okay to experience difficult emotions as you are doing important and challenging work. Also, try incorporating new traditions into your celebrations. New traditions can create meaningful and positive experiences for both you and your loved one.

              Remember that caregiving can be emotionally and physically demanding, and it’s important to take care of yourself during the holidays. Finding joy and understanding often begins with self-compassion and effective communication with those around you. Give yourself grace and treat yourself with kindness and patience. Wishing you all the best during this holiday season.

-Kaitlyn Cummings BSN, RN & The Sanford Center Wellness Team

 

The Sanford Center for Aging: A New Home for Caregiver Resources

Welcome to the newly updated NevadaCaregivers.org. The Sanford Center for Aging (SCA), part of the UNR School of Medicine, is the new home of the Caregiver Initiative. That includes this website as well as the Caregiver Guidebook. All the wonderful information and resources you have enjoyed are still here, however, they look a little different with the “silver and blue” theme now throughout the website. Further, the updated Nevada Caregivers Guidebook is available in print as well as on-line here. We are happy to deliver the guidebook to you or you can stop by our office and pick up a copy.

Black and white photo of Jean and Graham Sanford

Carson City pioneers Graham and Jean Cameron Sanford. Mrs. Sanford designated that 80 percent of her estate be used to establish an endowment for a special university program, a Geriatric and Gerontology Center.

Interestingly, the SCA, established in 1993, is celebrating its 30th anniversary this year. The mission of SCA is to “enhance the quality of life and well-being among elders through education, translational research, and clinical services, all designed to improve the quality of life for elders.” This focus directly relates to the experiences Jean Sanford had while caregiving for her mother. Mrs. Sanford encountered many challenges finding resources and support for both herself as a caregiver and for her mother. As she navigated these challenges it became clear that there was work to do. There needed to be a significant effort made towards improving the availability of support for caregivers. In this spirit, she “envisioned a future for older adults that offered vibrant health, cultural and social opportunities, and dignity of independence.” We at the Sanford Center for Aging hold dearly these intentions. Our team strives to honor and uphold Mrs. Sanford’s wishes.

Currently, the Sanford Center for Aging offerings include: a Geriatric Specialty Care Center, the Nevada Geriatric Education Center, a Gerontology Academic Program, ICECAP Nevada, Senior Outreach Services, Americorp Seniors, the Volunteer Transportation program, the Osher Lifelong Learning Institute, and a plethora of evidence-based wellness programs including Powerful Tools for Caregivers. Ongoing efforts continue with a focus to expand and further develop programs to meet the needs of older adults. We are excited to add caregiver resources to the offerings at the SCA. Our team will be sharing more about the different offerings of the SCA each month. Please visit our website to learn more about what we do and our programs. Be well.

-Sue Harris, PhD, Health and Wellness Coordinator

 

Caregiver’s Compensation Guide

Caregiving can be costly. As the United States population ages and lifespans extend, more aging adults require care. As of 2013, there were 66 million adult caregivers in the United States. However, many people do not identify as or do not realize they are caregivers. In such instances, people think they are simply being a good daughter, son, neighbor, friend, or family member. They may be taking care of mom, but they do not call themselves a caregiver.

Caring for a senior is prevalent at the local level. Approximately 8,200 (or nine percent) of those 60 or older in Washoe County serve as unpaid family caregivers to a senior by assisting with bathing, dressing, toileting, medication administration, and other personal needs.

Since 2016, the Community Foundation has led the Caregiver Support Initiative to address the needs of unpaid family caregivers to seniors. When the Caregiver Support Initiative started, local caregivers shared that finding resources and information was their most important need. One area of caregiving that is downplayed is the impact of caregiving in the workforce. One local caregiver’s vision was to have a “flexible and supportive workplace” to balance their caregiving responsibilities.

When we look carefully at working caregivers, their schedule does not fit neatly into clean blocks of time, working during the day, and taking care of mom at night. They are using their lunch breaks to check in at home, deliver prescriptions and meals, or research relaxing vacations, it is used for doctors’ visits. And what happens when an employee gets a call at work and learns their dad is in the emergency room? Often an employee becomes a caregiver suddenly, without warning or time to map out a plan with their employer.

Seventeen percent of the United States workforce provides care to older adults and that number is on the rise. The average length of time for caregiving responsibilities is 3.7 years. Sixty percent of caregivers work full-time. Locally, 71 percent of Washoe County employees who identified as caregivers stated their responsibilities. People frequently become caregivers during their prime income-earning years. Due to caregiving, employees often must work fewer hours, change jobs, or even retire. In fact, 19 percent of family caregivers in Washoe County have major debt due to caregiving.

Due to the financial strain that caregiving can bring, many family caregivers have called the Community Foundation asking how they can get paid as a caregiver. The Community Foundation’s Caregiver Support Initiative then worked together to create the Caregiver’s Compensation Guide. The Caregiver’s Compensation Guide shows how you can get paid while taking care of an aging family member in the state of Nevada.

Get a copy now by calling the Community Foundation at 775-333-5499. You can also download a copy on nevadacaregivers.org.

Durable Medical and Adaptive Equipment

In this edition, Occupational Therapist Angela Bialorucki shares how to acquire the many different kinds of durable medical and adaptive equipment available, and what is most suitable for your care receiver’s needs.


Mobility aids:

Most mobility aids are covered by insurance with a physician’s prescription. However, there may be some effort to be evaluated and determine qualification for an electric wheelchair or scooter. You will need a trained wheelchair evaluator to complete this assessment. I would suggest to contact local wheelchair medical vendors and inquire whether they have qualified personnel to perform assessment and submit to insurance for authorization; not all medical supply companies offer this service. 

Hospital beds, bedside commodes and transfer equipment:

Hospital beds, bedside commodes and transfer equipment are also often covered by insurance with a physician’s prescription and medical documentation to justify the need.  There are more stringent qualifications to get these items, but doctor and therapy records are usually enough to support the need. 

Self-care equipment:

Self-care equipment is not well covered by most insurance companies; however, the Veteran’s Administration will cover all equipment recommended by your doctor or therapist. Medicaid has been known to cover some. There also may be community-based programs that can provide equipment based on income level. Northern Nevada has Care Chest of Sierra Nevada that provides medical equipment, prescription assistance. For more information, visit https://carechest.org/site/.

Northern Nevada has many medical vendors that stock almost anything you will need.  Commonly used items are often available at local pharmacies and of course you can find anything you need and more online.  Look for the best price and availability once you have decided on a product you want. 

Websites to browse for Durable Medical Equipment and Adaptive Devices:

https://www.rehabmart.com/category/daily_living_aids.htm

https://www.performancehealth.com/products/brand/sammons-preston

https://www.medicalsupplydepot.com/

Local Medical Supply Stores:

Here are a few I’ve worked with that have good customer service and a variety of equipment options. There are many more specialty stores that you can find online or ask your insurance company who they contract with that may bill insurance directly. 

A Plus Oxygen and DME:  940 Matley Lane, Reno / 775-329-0101

Accellence Home Medical: 5450 Mill Street, Reno / 775-352-9539

Lincare:  1380 Greg Street, Sparks / 775-359-6262

Medtech Services: 555 Gentry Way, Reno / 775-384-8357

Mobility Devices:

Walkers 

Front Wheeled Walker: most helpful to provide support while walking and are safe given proper instruction in use.  Often used when upper body is strong, but legs are weak or painful.

4 Wheeled Walker: less stable if one needs to use arms to support self, but usually has a seat to allow rest if endurance is limited. 

3 Wheeled Walker: easy to maneuver in small spaces

Hemi-walker: typically used when one side of body is weak from a stroke or other brain injury

Canes

Single Point Cane – Single Point Canes are designed to provide an additional point of contact with the group for balance.

Quad Cane – A mobility device that is used as an aid for walking. This also helps reduce slippage.

HurryCane – A portable cane. The HurryCane adjusts to five different heights, pivots, bends, and provides stability to the foot.

 

Wheelchairs

Standard manual wheelchair: most commonly used; has adjustable and removable leg rests; many accessories available including seatbelts, brake extensions, elevating leg rests, lap trays, oxygen tank holders.

Transport wheelchair: lighter weight and collapses to smaller size for improved ease of transport to appointments, however more difficult for individual using this wheelchair to self-propel so caregiver needs to have strength enough to push.

Electric Scooters: many models available ranging from $800 to $2000; not safe for all individuals with vision, cognition and arm/hand function needing to be assessed before investing in this mobility device.

Gait/Transfer Belt: A must have for caregivers that need to provide physical support when helping someone to walk or transition movements (sit to stand, pivot to chair/wheelchair/bed/toilet)

Mechanical lifts / Transfer equipment: Mechanical lifts are devices that help assist with transfers and movements of individuals who require assistance and support for mobility.

 

Activities of Daily Living Equipment

Bathroom Equipment

Raised Toilet Seat:  it is safest to get one that either clamps to toilet bowl or has option to secure with hardware to toilet.

3:1 Commode: Three in One Commodes can be used over the toilet, at the bedside or even in the shower. They come with a bucket to be used at bedside and a shield to be used over the toilet to prevent spray outside toilet bowl. Most are height adjustable. 

Shower Chair/Tub Transfer Bench: Depending on type of shower you have, there are many options to allow someone to sit safely during bathing activities.  A small plastic shower chair is usually adequate for use in a stall shower. However, if you have a tub/shower combination and it is difficult to step over the tub, then a tub transfer bench may be necessary. Both options are usually height adjustable. 

Handheld shower: Can be found at home improvement stores, some pharmacies as well as medical supply companies.  Most are very easy to install. 

Grab bars: There are many styles and options. If one has a chronic disability, declining health from a progressive disease or aging process, having a contractor install permanent bars in the bathroom both in the shower and near the toilet is recommended.  There are some suction cup bars on the market, but don’t just look for the most affordable as these are not the most stable and have been known to pop off shower tile resulting in a fall with serious injury.  Make sure if you are looking at suction cup grab bars to read reviews or speak to your Occupational Therapist about models that are known to be safe. Transfer poles are also an option that can be installed at the bedside or in the bathroom to assist with standing balance and safety with transfers.

Hospital Bed:  Need a physician’s prescription.  Some have electric controls, but others have manual crank controls to raise and lower the bed.  Bed rails come in full length or ½ length.  Bed rails are designed to prevent falling out of the bed, but they are also useful to help with rolling or scooting in bed.  All are height adjustable, but some come with option to adjust the head or foot of bed as well.  May need specific documentation to justify need for head and foot adjustments in order to have insurance cover the more adaptable bed.

Self-Care Adaptive Equipment:  There are hundreds if not thousands of devices to make participation in self care easier for people with physical impairments such as: reacher, sock aid, long shoehorn, elastic shoelaces, plate guard, large/curved handled utensils, rocker knife, adaptive cups/mugs.  Some are easy to figure out how to use and whether it will be worth the money spent on a specific item.  Because these are not covered by insurance, if there is any question about what is recommended or how to use a piece of equipment, request a referral to Occupational Therapy for assessment and training. 

Websites to browse for Durable Medical Equipment and Adaptive Devices:

https://www.rehabmart.com/category/daily_living_aids.htm

https://www.performancehealth.com/products/brand/sammons-preston

https://www.medicalsupplydepot.com/

 

For more information on durable medical and adaptive equipment, call the Community Foundation at 775-333-5499

 

By

Angela Bialorucki

The Importance of Self-Care

In this edition, Christy Pappas, family caregiver, discusses just how important self-care is and how it makes a big difference in the lives of caregivers.

The last few years have been a challenge.

My parents moved in with my husband and I in 2014. My dad was falling and had the beginning stages of dementia. In 2015, my mother was diagnosed with cancer.

A few years later, my husband suffered a stroke. I was all alone and could not afford help. I also could not bring myself to consider assisted living. So, for the past 7 years, I was on my own.

But it did not have to be. I never understood when people told me I needed to take care of myself and I, honestly, would get upset when people suggested it. They have no idea how ridiculously impossible it is for me to even think about myself.

But I’m here to let you know that there is a way to take care of you. Because if you do not, you will suffer, and the people you are caring for will suffer with you. I know many caregivers throw up their hands and may think, you walk in my shoes.

Well, I think I can safely say, I have walked in your shoes, I know, and I care.

I am reaching out to caregivers to help make possible, what feels “impossible.” My father passed in Jan. 2021, and my mother lost her last bout of cancer in Nov. 2021. My husband still needs care, but I have learned to take care of me, and I no longer lie in bed crying when everyone is asleep at night. I finally opened my eyes and now I really do see.

Now, for self-care, I do yoga every morning, exercise outdoors, once again, and pray every day. Patience, faith, hope and love are a huge part of my everyday being. And I forgive myself for not being perfect, because I know I do everything I can do- the best I can do- for others, always.

But I know it’s a different journey for each of us getting to this place. And finding the path to take to get there was crucial for me. I’m grateful for my experiences. I’ve grown much stronger; humbler.

There are always people to support you…you just need to ask.

For more information on support groups, please call the Community Foundation at 775-333-5499.

By Christy Pappas

How to Include Anyone this Holiday Season

The holiday season can be the most wonderful time of the year, but many fail to realize the holidays are also a sad time for a lot of people. Some may be away from family or grieving the loss of a loved one. If you are caregiving for someone who might be away or cannot be with family during the holidays, here are a few ways you can cheer them up.

Deanna Hearn, a former caregiver and president of the Nevada Caregivers Coalition, says the most important thing to do is to make an effort to include the person you are caring for in holiday activities to encourage their holiday spirit. 

1. Share Activities

Sharing holiday activities with people can make things more joyful, especially for those who can’t get around due to mobility issues. You can ask them to do light work like wrapping gifts or choosing which kind of decorations to put up around the house.

2. Intimate Gathering

The holidays are about being with family and friends, but what if the person you are caring for doesn’t have family close by? If the person you are caring for is going to be alone this holiday season, you can offer to throw an intimate gathering for them instead with warm food and hot drinks.

3. Music is Magic

There are a lot of holiday activities in the community – concerts, ballet recitals, Christmas carols, and so on. According to Deanna, music is magical – whether you are 15 or 90, songs are heartwarming, good for people to share, and meaningful to us. Music connects us all and connection is what fuels the holiday spirit.

4. Learn More About their Traditions

It is important for caregivers to understand the tradition of the person they are caring for. Traditions can make the holiday alive for people even if they are old or sick – it helps them remember where they are from. Deanna shares:

“I really like the idea of honoring cultures and traditions. I think that’s so important when caring for someone who may celebrate the holidays differently. This may bring them warm memories of when they were growing up, raising their children, or even the lives they lived in another country. All of that is important at a time when people often feel lonely and unable to play an active role in the world they once knew. People give up so much when they need caregiving support that anything the caregiver can do to make their lives richer and more joyful is especially important during the holidays which can be a melancholy time for many.”

5. Simply Being There for Them

We have all heard of toxic positivity by now, which can be detrimental to people who are going through a tough time. If the person you are caring for is sad or is going through a rough time during this year, you can simply just be there for them. When we care about people, it is in our nature to want to make things better for them, but we have to accept that we cannot fix their feelings. Instead, we can offer a listening ear to them for support.

Caregiving can be tough. We would like to thank all caregivers for all the hard work you consistently do, even on days when it is hard, like the holidays. We hope you are able to spend time with your family during this time and recognize when you need a break because you deserve it. We wish you all a wonderful holiday season!

For more information on resources, please call the Community Foundation at 775-333-5499 or visit nevadacaregivers.org.

Story by: Deanna Hearn
Interview conducted by: Luiza Benisano

Grief while Caregiving

Everyone experiences grief in his or her life. All of us lose friends and family and it is a heavy task for every one of us. Our best advice is that everyone who grieves show themselves compassion by allowing themselves the time and space to process it all. While grief is inevitable, please remember that processing it is essential for your wellbeing. Grief is a time where you are allowed to protect time for yourself.

Caregivers already have a tendency of putting themselves second to the person they are caring for. Being a caregiver and going through grief at the same time presents more challenges because both require time to heal.

Grady is not new to the world of caregiving. He served as Washoe County Senior Services Director. He was responsible for developing the county’s Master Plan for Aging Services, which encompasses 12 goals on improvements of services for seniors. In 2015, he introduced the idea of creating the Caregiver Support Initiative, when the Community Foundation of Northern Nevada was seeking ideas for their second initiative.

He also knows first-hand what it’s like to juggle being a family caregiver and allowing himself the space to grieve. At one point, he was a caregiver to his brother, mother-in-law and his wife. He said that when he was caregiving for his brother, he already felt a sense of loss, because he knew that his brother was at the end of his life.

He also cared for his mother-in-law at the same time his wife unexpectedly suffered a heart attack. He had to care for both. Not surprisingly, he felt an immense amount of pressure and worry about them while he also continued as their caregiver.

“I am fortunate to have friends,” he said.  “They helped me through this.” When he was not tending to his caregiving duties, he said he surrounded himself with people who knew what grief was and had often experienced it themselves. And, when Grady was diagnosed with cancer, he decided to find friends who could relate to him. His informal support group was comprised of people who had cancer or were cancer survivors. “We talked a lot and shared everything. In spite of what you may have heard, men are willing to share and support one another.” He said it was very helpful being around people who truly understood him.

Grady advises caregivers to look out for themselves during critical times:

“My advice to caregivers is to reach out. Create your own support group of people who know what you are going through on a personal level. Figure out how you can take breaks from caregiving from time to time to catch your breath. As far as grief goes, it is something you can’t fix, but something you can go through. Take that time for yourself, and allow your life to change. And get away for a bit, even if that means just mowing your lawn. If you don’t, you will wear yourself out”.

If you don’t have the time to seek support groups, you can always form your own support group. Sometimes, you just need one or two friends you can confide in. Seek friends who know what loss feels like when you are processing the death of a loved one. Grieving is not something we want to do but it is a part of life. Having compassion for ourselves and towards other people in grief is crucial at this time. Lastly, enjoy your time with family and friends. Those moments are what we will all have to experience ourselves someday.”

Click here for more information on bereavement groups.

Click here for more information on support groups, or call the Community Foundation at 775-333-5499. 

You can also check out Solacetree.org for grief support.

Grady Tarbutton, former Washoe County Senior Services Director
Interview by Luiza Benisano